MARCH 21, 2024 – For yet another day I’ve been stuck in a neutropenic rut, but I’m treating this condition as far from hopeless. In the first place, what’s the alternative? Second, at around 11:45 this morning, just as I was about to lie down for a nap, my good oncologist, Dr. Bhaskar Kolla called. …
SCHUMANN, ARGERICH, MEHTA . . . AND THE EMERGENCY ROOM
MARCH 20, 2024 – I’m sick. And tired. Tired of being sick; sick of being tired. On the positive side, all test results on Monday, at least were negative: in my misery then I checked into the “Urgency Room,” where the staff took swabs for the possible suspects—flu, strep, RSV, Covid-19—and x-rays to rule out …
PLATINUM STANDARD
MARCH 28, 2023 – Today I had a medical encounter that bolstered my faith in the future. The occasion was a six-month check-up with Dr. Arndt, my pulmonologist, which went swimmingly (my transplant workup a year ago had revealed a lingering lung issue arising from a cat allergy, channeling me to the pulmonology section for …
BIOPSY DAY
FEBRUARY 16, 2023 – Today I experienced another bone marrow biopsy ahead of my six-month-post-transplant appointment with Dr. Killjoy. The doc earned his nickname when he said last August, “No more downhill skiing for you.” I plan to show him a picture of S-turns I made recently on a downhill ski slope. I’ll explain that …
THE TRAVEL BOOK
FEBRUARY 13, 2023 – Amidst the day’s stresses, missteps, mishaps, curveballs, roadblocks, news headlines and yes, ice-canyons in the alleyway, the sun smiled—when I looked up long enough to notice. Plus, there were the gems—my monthly, uplifting appointment with my hero, Dr. Kolla; a walk with a friend and scintillating conversation about the study of …
“BEING GREAT”
JANUARY 30, 2023 – The other day I attended to some light “work-work” against the backdrop of a recording by Itzhak Perlman performing Sergei Prokofiev’s Violin Concerto No. 1 in D. I hadn’t heard the piece in a while, and it evoked many memories; nothing specific, just remembrances of how great music has edified my …
“ONLY” $653,680.19
JANUARY 24, 2023 – Yesterday I experienced sticker shock. I wasn’t reacting to the average U.S. house sale price in 2022 ($507,800) or the price of a 2023 Beamer – 520i ($76,995) or . . . room, board and tuition at Harvey Mudd College, the most expensive private college in America ($77,449). No, I was …
MEDICAL APPOINTMENTS DAY: FUN PART, BEST PART
JANUARY 17, 2023 – Today I had my monthly follow-up appointment with Dr. Kolla, followed by an encounter with the “infusion center,” where nurse Patty administered two butt shots plus a rabies injection. In more professional lingo, the butt shots were doses of csxzysesisterkappalambdaiotazonifer and xylicriminelamndanumuomicronpiclomyaquavazine, otherwise known as mono-clonal antibodies packaged under the brand …
THE GLASS HALF FULL
JANUARY 15, 2023 – Today the weather gods smiled, and gave a taste of spring-skiing. As I skated down the ski track, up and down dale, I noticed a number of weekenders on the course—friends on a lark; parents with young kids; older folks, gliding along slowly but surely. Citizen racers were few. Doubtless they …
“TOO GOOD TURNS”
JANUARY 7, 2023 – Followers of this blog know that in the course of my stem cell transplant procedure back in late August, Drs. Killjoy (both of them) told me, “No more downhill skiing for you. Cross-country, fine; downhill, no.” Their perfectly sound reasoning was that the multiple myeloma had turned my skeleton into “Swiss …
OLD YEAR OUT, NEW YEAR IN
JANUARY 1, 2023 – Happy New Year cheers to all my readers! May 2023 bring you good health and lots of happiness. And may it bring a measure of peace and prosperity to the world. Yesterday, I celebrated the end of an eventful year by skiing for an hour on the American Birkebeiner Trail, the …
INSIDE THE BUBBLE LOOKING OUT (PART II)
DECEMBER 30, 2022 – (Cont.) Just as the train pulled to a stop at the closest station, my tires gripped, shooting my “bubble car” past the tracks and fishtailing across the street in front of oncoming traffic. Ahead lay the clinic with a “Covid Vaccinations Here” sign sticking out of a snowbank near the entrance. …
INSIDE THE BUBBLE LOOKING OUT (PART I)
DECEMBER 29, 2022 – In retrospect, I’m surprised by my adaptation to circumstances, but a couple of days ago, behind my astonishment lay self-doubt and rising fear. For the past 13 months I’ve lived a “bubble existence.” It was that long ago that I was last inside someone else’s house—the Connecticut home of our son …
A NEW YORK ATTITUDE ABOUT CANCER
DECEMBER 19, 2022 – Today I met with my oncologist, Dr. Kolla, the saint who’d called me on December 29 last year—five days before my first appointment with him. His outreach had impressed me. When we met in person, I was even more impressed—and assured. At today’s appointment, Dr. Kolla started off by telling us …
BAD NEWS, GOOD NEWS
DECEMBER 16, 2022 – Today, shortly after an hour-long ski workout in ideal conditions, I received a call from the coordinating nurse of a study in which I’d agreed to participate. The study is designed to test the efficacy of a combination of two medications in post-stem cell transplant, multiple myeloma patients. One of the …
DAY 100: REFLECTION
DECEMBER 1, 2022 – The days leading up to the transplant passed all too quickly. I was feeling great, but being very much a medical wimp, I dreaded the procedure that loomed ever closer and feared what could be an excruciatingly slow, protracted and unpleasant recovery process. Why couldn’t time stop where I was? More …
DAY 85: “NO SIMPLE SOLUTIONS, JUST INTELLIGENT CHOICES”
NOVEMBER 16, 2022 – Today, after many weeks of embracing the delights of life—yes, LIFE in all its beauty and brilliance—following my autologous stem cell transplant in August, I had to spend two hours on the phone with a coordinator of a clinical study. The call reminded me that though I’m out of “cancer jail,” …
MASKING UP . . . AGAINST ONESELF
NOVEMBER 15, 2022 – Today I experienced a bad case of . . . myself. The back story: Upon successful emergence from my bone marrow stem cell transplant, I was prescribed fluorescent-yellow medicine as palatable as transmission fluid. The intended purpose of the daily dose of this awful stuff was to prevent bacterial pneumonia. When …
DAY 74: ONE FOR A THERAPY SESSION
NOVEMBER 5, 2022 – Blogger’s note: Given the subject matter of this (lengthy) post, I found it difficult to split it into installments. I think you’ll understand why, assuming you read the post in its entirety. I hadn’t touched my fiddle in a week, and before that, not in a month; maybe that’s why …
DAY 72: CLIMBING DOWN OFF THE LADDER
NOVEMBER 3, 2022 – This morning at daybreak while I was on my pre-breakfast, woodland walk, my good friend Linda Hoeschler called. It’d been a while since we’d talked. By way of my 10/10-12/2022 posts, however, she was aware of my encounter with “the stick.” She admonished me to be careful while up here in …
DAY 71: THE SOUL REVEALED UNTO ITSELF
NOVEMBER 2, 2022 – Today while bud-capping white pine trees in the “tree garden,” I spotted a four-year old seedling nestled up against an old, pin oak tree. The red leaves of a raspberry plant, backlit by Apollo’s chariot, dangled over the pine. A nice picture, I thought. Just as I reached for my iPhone, …
DAY 67: REFUGE AND REJUVENATION
OCTOBER 29, 2022 – Today I spent all day surrounded by nature in all its glory. The experience was singularly restorative. As I entered the great outdoors, just before dawn, a bald eagle glided by along our shoreline—omen of a good day. The dawn seemed to continue exactly where dusk had left off yesterday: a …
(DAY 50!) SELF-TERRORIZED BY A SINGLE MISSTEP (PART III OF III)
(Cont.) I then took a deep breath and realized my best next step was to call one of my closest friends, Ravi Balasubrahmanyan—who just happens to be . . . a physician of the highest rank of intelligence and experience. Back in December when I’d described to Ravi my reasons for a recent (unsatisfactory) visit …
(DAY 49!) SELF-TERRORIZED BY A SINGLE MISSTEP (PART II OF III)
OCTOBER 11, 2022 – (Cont.) The sting was slight, but the sharp tip of the branch—green with microbes—broke the skin on the side of my right ring finger. Immediately, I recalled my BMT doc’s warning: “If you scratch yourself on some pine needles, [really bad stuff will ensue].” I gulped: A pine branch partially buried …
SELF-TERRORIZED BY A SINGLE MISSTEP (PART I OF III)
OCTOBER 10, 2022 – I don’t wish to tempt fate, so in telling the story about to be told—Grizzly Adams must wait another couple of days (See yesterday’s post)—I don’t want to appear dismissive of the doctor’s dire warning. At the same time, however, my reaction to yesterday’s “incident” underscores a hypochondriac’s susceptibility to medical …